Welcome back to Day 3 of our grueling adventure of discovering our oldest son has Type 1 Diabetes. He was settled into the PICU for 3 days for the critical care and round the clock monitoring to get his levels regulated. His blood sugar levels were off the charts, meaning a regular blood glucose meter could not take an accurate reading. This resulted in hourly blood work done by the lab tech until his BG was under 350. He had various IV fluids due to severe dehydration and his potassium, sodium, etc were not right. We got very little sleep with the nurse in his room almost constantly for the first 3-4 hours checking vitals, measuring urine output, checking on the alarms that seemed to go off quite frequently, etc. This was quite nerve-racking to be within five feet of your child and NOT really be able to do anything for him. Just hold his hand during labs and be sure he knew we were there although he was sedated to help keep all the tubes and lines in place.
He made a very quick recovery for his breathing and was able to get off the dopa-mine drip and be extubated within 12 hours of being intubated. This was a very good thing and took one less worry off our minds. Chest x-ray and CT scans all came back normal which was another praise. The nurse let labs do his BG levels instead of finger pricks and labs for some of the time the first day which helped him have less pricks but he still began to look like a pincushion. We were barely awake on the first full day of being in the hospital when we started to get bombarded with docs and specialists. We were told the dietitian would talk to us, a Diabetes Team nurse would train us and that the Endocrinologist would speak with us the next day. Remember he had not been previously diagnosed with Diabetes and we were totally new to the whole Type 1 Diabetes thing. No one had specifically said officially at this point that his diagnosis was Diabetes but that they were proceeding like it was. Hubby and I weren’t convinced it was Diabetes and were not going to go on assumptions until we were officially told which we pressed on 12/15/14.
I had decided that I should go home early evening to be with the younger three while Riley stayed the night. My parents brought Lil’ Red to the hospital to nurse and bring us some drinks and snacks. I keep a manual Medela breastpump in the van at all times which came in handy. I nursed at the 1st ER, pumped a little at 2nd ER and had to pump some more once in PICU. Once Lil’ Red arrived, he was ready to nurse and I was so full he puked up all the breastmilk all over me and the couch I was sitting in. That made the decision to go home for me. My parents drove me home which was good since I had not had enough sleep to drive by myself at this point. I got a shower and ate. I tried to get some sleep before my mother-in-law came over with the other kids. Once she came over I went back to the hospital for 2-3 hours before driving home for the night.
Behind the Scenes: I had to line up care for the younger 3 children each day so I could go back to the hospital. I also called another homeschool mama friend to request that meals be delivered for dinner so I didn’t have to worry about my family being feed throughout the week. Both were a great blessing, but stressful at the same time.
I went back to the hospital later that afternoon driving my hubby’s car. This way no parent was left at the hospital without transportation just in case. I stayed a few hours longer then planned but was able to return home before bedtime. I snuggled three kids in my bed that night being thankful that hubby had sick days he could use and stay with Eldest without losing pay.
Monday and Tuesday blur together with visits from Dietitian, Diabetes Team Nurse educator, Endocrinologist, PICU Doc, Residents, Social Worker, Billing, and Diabetes Team Psychologist. Some we only met with once others was numerous times throughout that 48 hour period.
The Dietitian shared with us all about carbohydrate counting and how to measure out food. She grilled us on what had carbs and what did not. She explained what could be 15g and 30g snacks that would be needed to have on hand for low blood sugars or for between meals. She showed us a chart of “free” snacks that contain little to no carbs and could be eaten more frequently without blood sugar elevations.
The Diabetes Team Nurse really invested in our 3-day education because she had to be sure we knew how to check blood glucose levels, how to figure out carbs to insulin ratio, how to use a syringe to draw up insulin, how to correct highs or lows, how to use an insulin pen,etc. The list goes on and on but rest assured we passed all tests with flying colors. We got to practice some of these skills on the “fake skin” before giving ourselves a saline injection! Yes, that’s right, we had to give ourselves a shot. Boy are the needles so much smaller then they used to be. We were given instructions on how to use the Accu Chek Nano meter, Humalog insulin pen, and Fast Clix lancing device.
Trust me at times our heads were spinning. Sometimes from information overload and other times from sleep deprivation and lack of consistent meal times. Luckily I was not going through this whole ordeal alone. Riley was along for the ride right next to me. We learned these new care techniques together which will keep our son alive and healthy. Now that’s some empowering marriage training!
We listened in to the rounds that the care team made most mornings and started to understand some of the lingo like ketones, potassium and sodium levels.
Tune in to tomorrow to hear about visitor’s, presents, and getting released from the 3rd floor. Thank you for sticking with me as I write a 4 part post! I think being able to tell our story has been therapeutic for me and had to be done. Sorry for some of the rambling but I got distracted and have sat down over a dozen times to get these posts written!
Did you miss the other posts in this series? Check them out below:
Other Type 1 Diabetes Posts:
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